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Join this chapter to see events centered around the theme of rare disease. From learning about new rare conditions to advocacy, these events are here to support your experience living with rare disease.

There are currently no upcoming events. Please check again soon.

Dec 7, 2022

Facebook Live

Journey Through Life With a Rare Disease: Two Unique Perspectives
Rare Disease Events

Feb 28, 2022

Instagram Takeover

Celebrating Rare Disease Day With Kelly Baker
Rare Disease Events

Feb 17, 2022

Facebook Live

Easing the Transition for a Child With a Rare Disease
Rare Disease Events

Dec 7, 2021

Facebook Live

Improving Research and Therapies for Rare Diseases
Rare Disease Events

Oct 22, 2021

Facebook Live

Finding a Rare Disease Clinical Network
Rare Disease Events

Oct 6, 2021

Facebook Live

Rare Disease in the Digital Age
Rare Disease Events

Jun 29, 2021

Facebook Live

My Journey With a Rare Disease
Rare Disease Events

Apr 30, 2021

Facebook Live

Our Journey With a Rare Disease
Rare Disease Events

Apr 14, 2021

Facebook Live

Clinical Trials: Is Your Family Ready?
Rare Disease Events