The Many Faces of Rare Disease

Rare Disease Events

Thursday, March 2, 2023, 9:00 – 10:00 PM UTC

Public - Facebook or Instagram
Rare Disease

About this event

The diagnosis journey for those with rare disease can be a long and isolating experience. Join Mike Porath, CEO & Founder of The Mighty, Skye Gailing, patient advocate & Mighty editor of 'Rare Weekly,' Greg, LEMS patient advocate, and Debbie Drell, Director of Membership at NORD, for a live discussion covering their perspectives across the diagnosis process, community support, and mental health impact of rare disease.

This event was made possible by an unrestricted educational grant from Catalyst Pharmaceuticals.


  • Mike Porath

    The Mighty

    CEO & Founder

  • Debbie Drell


    Director of Membership

  • Skye Gailing

    The Mighty

    Editorial & Community Associate & Mighty With Migraine Podcast Co-host

  • Greg

    LEMS Patient Advocate


Catalyst Pharmaceuticals logo

Catalyst Pharmaceuticals

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