Journey Through Life With a Rare Disease: Two Unique Perspectives

Rare Disease Events
Thu, Jul 7, 1:30 PM (PDT)

About this event

Spinal muscular atrophy (SMA) is a rare, genetic neuromuscular disease that affects people of all ages. Join patient advocates Alexa Dectis and Jud Broadhurst as they discuss how treatment advances have impacted their lives with expert neurologist Dr. Chamindra Konersman and Mighty host Ashley.

For US Audiences Only. Sponsored by Biogen.

INDICATION
SPINRAZA® (nusinersen) is a prescription medicine used to treat spinal muscular atrophy (SMA) in pediatric and adult patients.

IMPORTANT SAFETY INFORMATION
Increased risk of bleeding complications has been observed after administration of similar medicines. Your healthcare provider should perform blood tests before you start treatment with SPINRAZA and before each dose to monitor for signs of these risks. Seek medical attention if unexpected bleeding occurs.

Increased risk of kidney damage, including potentially fatal acute inflammation of the kidney, has been observed after administration of similar medicines.
Your healthcare provider should perform urine testing before you start treatment with SPINRAZA and before each dose to monitor for signs of this risk.

The most common side effects of SPINRAZA include lower respiratory infection, fever, constipation, headache, vomiting, back pain, and post-lumbar puncture syndrome.

These are not all of the possible side effects of SPINRAZA. Call your healthcare provider for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.

Before taking SPINRAZA, tell your healthcare provider if you are pregnant or plan to become pregnant.

Please see full Prescribing Information.
This information is not intended to replace discussions with your healthcare provider.


Panelists


Host

  • Ashley Kristoff

    Ashley Kristoff

    The Mighty

    Creative Project Manager

    See Bio