Getting to the Heart of the Social Impact of Rare Disease

Rare Disease Events

Tuesday, February 28, 2023, 6:00 – 7:00 PM UTC

Public - Facebook or Instagram
Rare Disease

About this event

Did you miss the livestream? Watch the replay here!


In honor of Rare Disease Day, Mike Porath, Founder and CEO of The Mighty, Carli, a 26-year old woman living with fibrodysplasia ossificans progressiva (FOP), and Jeanine, a woman in her 50s living with primary biliary cholangitis (PBC), will dive into a live discussion speaking to their personal experiences related to the social and emotional impacts of rare disease on their lives.

Sponsored by Ipsen.

Panelists

  • Carli

    Rare Disease Patient Advocate

  • Jeanine

    Rare Disease Patient Advocate

Moderator

  • Mike Porath

    The Mighty

    CEO & Founder

Sponsor

Ipsen logo

Ipsen

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