Getting to the Heart of the Social Impact of Rare Disease

Rare Disease Events

Tuesday, February 28, 2023, 6:00 – 7:00 PM UTC

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Rare Disease

About this event

Did you miss the livestream? Watch the replay here!

In honor of Rare Disease Day, Mike Porath, Founder and CEO of The Mighty, Carli, a 26-year old woman living with fibrodysplasia ossificans progressiva (FOP), and Jeanine, a woman in her 50s living with primary biliary cholangitis (PBC), will dive into a live discussion speaking to their personal experiences related to the social and emotional impacts of rare disease on their lives.

Sponsored by Ipsen.


  • Carli

    Rare Disease Patient Advocate

  • Jeanine

    Rare Disease Patient Advocate


  • Mike Porath

    The Mighty

    CEO & Founder


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