Finding a Rare Disease Clinical Network

Rare Disease Events
Fri, Oct 22, 2021, 4:00 PM (EDT)

About this event

Join the Mighty as we talk with Vanessa, Board Member of Dup15q Alliance and Amanda, CEO of the Angelman Syndrome Foundation about the importance of finding rare disease clinical networks and what to look for when adding a health care provider to your network.

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Hosts

  • Vanessa Vogel-Farley

    Vanessa Vogel-Farley

    Dup15q Alliance

    Board Member, Science & Research Chair

  • Amanda Moore

    Amanda Moore

    Angelman Syndrome Foundation

    CEO