Finding a Rare Disease Clinical Network

Name: Finding a Rare Disease Clinical Network
Start: 2021-10-22T16:00:00-04:00
End: 2021-10-22T16:45:00-04:00

Rare Disease Events

Friday, October 22, 2021, 8:00 – 8:45 PM UTC

Public - Facebook or Instagram

Rare Disease

About this event

Join the Mighty as we talk with Vanessa, Board Member of Dup15q Alliance and Amanda, CEO of the Angelman Syndrome Foundation about the importance of finding rare disease clinical networks and what to look for when adding a health care provider to your network.

Powered by Ovid 

Hosts

Vanessa Vogel-Farley

Dup15q Alliance

Board Member, Science & Research Chair

Amanda Moore

Angelman Syndrome Foundation

CEO

Finding a Rare Disease Clinical Network

Rare Disease Events

About this event

Join the Mighty as we talk with Vanessa, Board Member of Dup15q Alliance and Amanda, CEO of the Angelman Syndrome Foundation about the importance of finding rare disease clinical networks and what to look for when adding a health care provider to your network.

Powered by Ovid

Hosts

Vanessa Vogel-Farley

Amanda Moore

Sponsor

Ovid