We Are Visible wants to show the full picture of the condition including the complex presentation of symptoms, to the complications while searching for a diagnosis, over misdiagnoses and their harmful consequences, but also the daily challenges EDS patients face, and the differences in accessibility of care depending on the area they live at. The documentary focuses on the one thing that unites all patients: Their never-ending endurance to overcome those obstacles and to thrive. It conveys the hope and strength with which EDS patients fight for a better quality of life and care.
Filmmaker Karina Sturm is inviting the Ehlers-Danlos community to an exclusive screening of her upcoming feature-length film We Are Visible, which shows a variety of people living with Ehlers-Danlos syndrome and related conditions all around the globe.
Every one of the contributors is fighting for something:
For instance, for a better quality of life, for better treatment options, for their children, for awareness, or simply for survival. EDS patients are not victims; they are powerful individuals.
They are visible!
This event is free and a link to access the movie stream will be sent to all that RSVP.
2 PM EST
If you are watching from the UK then the screening time is 7pm
If you are watching from PST or Pacific Time, the screening time is at 11am
You can view trailers and get more info on "We are Visible" Here
*NOTE: This is the english version of the film and won't feature captions or descriptive audio*
Karina is a German native who currently lives in San Francisco. She was a research associate in the past but had to give up her job due to Ehlers-Danlos syndrome and comorbid conditions. Today, she studies journalism in Scotland, and this film is part of her MA thesis. Additionally, she is a freelance journalist with a focus on medicine, science, and disability.
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Karina grew up in Germany but currently lives in San Francisco, CA. After finishing school, she has worked in the medical field for eight years. As a laboratory technician, she worked in a German research facility with a focus on biotechnology. In 2010, she developed symptoms related to Ehlers-Danlos syndrome and comorbid conditions and was unable to continue her research. She soon found her passion for writing and started to combine her medical knowledge with her personal experiences with disability and chronic illness and produced articles about medicine, science, and disability. 2018, Karina was accepted into a journalism program in Edinburgh, Scotland and has been studying ever since. As part of her degree, she has worked with blind journalist Belo Cipriani and produced three accessible short films called ”Firsts” that feature writers with different disabilities. Additionally, she writes for an Austrian magazine for medical professionals with a focus on the patient’s perspective, and she has also written for international publications such as the Columbia Journalism Review. Besides journalism, Karina has a strong passion for all activities that involve being on or in the ocean. She loves traveling, dogs, facts, and Heavy Metal music, and hates lies, intolerance, and cooking. Karina’s film We Are Visible is a non-profit project supporting EDS organizations and entirely self-funded, as well as part of her MA thesis. Moreover, she considers this to be the most important project of her life.
