Our Journey With a Rare Disease

Rare Disease Events

Friday, April 30, 2021, 6:00 – 7:00 PM UTC

Join brothers Kwame and Ahmad Garrett-Price as they tell their story about getting diagnosed the rare disease von Hippel-Lindau (VHL), connecting with the VHL Alliance and how it affects their lives today.

About this event

Join brothers Kwame and Ahmad Garrett-Price as they tell their story about getting diagnosed the rare disease von Hippel-Lindau (VHL), connecting with the VHL Alliance and how it affects their lives today.